Data Management
SQL Queries for HCV Case Finding
@ Mount Sinai Health System. Code as of September 2020.
CDAF Tools and Patient Registries
The Center for Disease Analysis Foundation provides some tools free charge.
INHSU Guide for Hepatitis C Medical Record Auditing
Learn what a medical record audit is, look at potential barriers to data entry and how to overcome them, and get guidance on how to implement an audit in your service.
HBV and HCV Relink Studies: 2016 to Present
Asia
- Chang, Li-Jen, et al. “Factors associated with the refusal of direct-acting antiviral agents for the treatment of hepatitis C in Taiwan.” Medicina 58.4 (2022): 521.
- Chen, Cheng-Jen, et al. “Hepatitis C micro-elimination through the retrieval strategy of patients lost to follow-up.” BMC Gastroenterology 23.1 (2023): 1-9.
- Chien, Cheng-Hung, et al. “The Challenge of a Recall Program from a Community-Based Hepatitis C Screening Campaign: The Effectiveness in HCV Microelimination.” Microorganisms 12.7 (2024): 1402.
- Gamkrelidze, Amiran, et al. “Innovative linkage model to re-engage lost-to-follow-up individuals in the national hepatitis C elimination program of Georgia.” Journal of Hepatology 75 (2021): S643-S644.
- Huang, Jee-Fu, et al. “Towards a safe hospital: hepatitis C in-hospital micro-elimination program (HCV-HELP study).” Hepatology International 16.1 (2022): 59-67.
- Yen, Hsu-Heng, et al. “Retrieval of lost patients in the system for hepatitis C microelimination: a single-center retrospective study.” BMC Gastroenterology 21.1 (2021): 209.
Australasia
- Abbott, Mielle, et al. “A pilot project harnessing surveillance system to support clinicians providing clinical care for people diagnosed with hepatitis C in Victoria, Australia, September 2021 to 31 March 2022.” Eurosurveillance 29.29 (2024): 2400028.
- Jacob, Rachael, et al. “Routine screening of emergency admissions at risk of chronic hepatitis (SEARCH) identifies and links hepatitis B cases to care.” Liver International 43.1 (2023): 60-68.
- White, Lauren, et al. “Facilitating treatment of HCV in primary care in regional Australia: closing the access gap.” Frontline Gastroenterology 10.3 (2019): 210-216.
Europe
- Abergel, Armand, et al. “RECONVOCC: Can we reconvene chronic hepatitis C patients who were lost to follow-up?.” Journal of Hepatology. Vol. 75. Radarweg 29, 1043 NX Amsterdam, Netherlands: Elsiever, 2021.
- Aguilera, Victoria, et al. “Efficiency of the Relink C strategy: identification and retrieval of chronic HCV patients full and partial diagnosed but unlinked to care.” Medical Research Archives 12.12 (2024).
- Almena Sereno JA, et al. Active Search for HCV Ab+ Patients Registered in the Hospital Lab: Retrieval of lost to follow-up patients from 1/2010 to 12/2020 in Badajoz, Spain AEEH 2023. 52
- Alventosa Mateu, Carlos et al. “Outcomes of an automated alert system from Microbiology to link diagnosis to treatment in patients with hepatitis C virus.” Revista Espanola de Enfermedades Digestivas vol. 115,4 (2023): 181-187. doi:10.17235/reed.2022.8716/2022
- Andaluz, Irene, et al. “Patients with hepatitis C lost to follow-up: ethical-legal aspects and search results.” Revista Espanola de Enfermadades Digestivas (REED) 112.7 (2020): 532-538.
- Balcar, Lorenz, et al. “A systematic PCR record‐based re‐call of HCV‐RNA‐positive people enables re‐linkage to care and HCV elimination in Austria—The ELIMINATE project.” Liver International 44.12 (2024): 3151-3163.
- Barclay, Stephen, et al. “Patients with hepatitis C (Redpath): a randomised controlled trial of telephone contact or offer of an incentive, in addition to a standard letter.” Journal of Hepatology 73 (2020): S328.
- Barda, Beatrice, et al. “A Retrospective Study on Hepatitis C Virus Infected Individuals Lost to Follow-Up in Ticino: The Hub and Spoke Approach.” Open Journal of Internal Medicine 12.4 (2022): 194-198.
- Beekmans, N., and M. Klemt-Kropp. “Re-evaluation of chronic hepatitis B and hepatitis C patients lost to follow-up: results of the Northern Holland hepatitis retrieval project.” Hepatology, Medicine and Policy 3.1 (2018): 1-6.
- Burgui, Cristina, et al. “Recapture of patients with an incomplete diagnosis of hepatitis C virus infection.” Revista Espanola de Enfermadades Digestivas (REED) 112.7 (2020): 525-532.
- Campos-Gonzaga L, et al. Identification of Patients Diagnosed with HCV But Not Seen by Specialists: Review of patients diagnosed with HCV and not followed up with specialists from 2006-2021 in Jerez, Cadiz, Spain. GEHEP 2022
- Chelouah S, et al. Recall of HCV Patients in a Psychiatry Hospital by Non-Specialist Prescribers: Retrospective study to evaluate screening test and treat strategy. AFEF 2022.
- Diaz Munoz R, et al. Search for Active Patients with HCV: Retrospective review of medical records of patients from 2017 to 2021. AEEH 2023.
- Dimmendaal, M., et al. “Retrieval of chronic hepatitis B patients in the Utrecht region in the Netherlands.” The Netherlands Journal of Medicine 77.6 (2019): 199-203.
- Dröse, Sandra, et al. “Retrieval of patients with hepatitis C who were lost to follow-up in Southern Denmark.” Infectious Diseases 55.5 (2023): 361-369.
- Etoori, David, et al. “Results from a retrospective case finding and re-engagement exercise for people previously diagnosed with hepatitis C virus to increase uptake of directly acting antiviral treatment.” BMC Public Health 24.1 (2024): 2427.
- Feliu‐Prius, Anna, et al. “Assessing the rate of non‐linkage to care and identifying barriers in individuals living with hepatitis B. Results of the LINK‐B study.” Liver International (2023).
- Freyre Carrillo C, et al. Search for Lost Patients Without HCV Diagnosis . Review of patients with positive HCV antibodies but without confirmatory RNA testing from 2011-2020 GEHEP 2022. P42
- Gao-Du, Y., S. Brocklesby, and L. Corless. “Case finding can successfully re-engage persons lost to follow-up and increase treatment rates in hepatitis C virus services.” Journal of Hepatology 68 (2018): S326-S327.
- Grande G, et al. Recovering Lost HCV Patients in the System: Locating and recovering HCV patients previously lost at the Hospital Regional Universitario de Málaga. AEEH 2023.
- Guerra Veloz, María Fernanda, et al. “HCV microelimination strategies: an interventional study in diagnosed patients without access to the system.” Liver International 41.5 (2021): 928-933.
- Heil, Jeanne, et al. “Retrieval and re-evaluation of previously diagnosed chronic hepatitis C infections lost to medical follow-up in the Netherlands.” European Journal of Gastroenterology & Hepatology 32.7 (2020): 851-856.
- Hernandez-Guerra M, et al. Effectiveness of ReLinking HCV RNA+ Patients to Care Through Regional Hospitals AASLD 2022. Poster #3427
- Isfordink, Cas J., et al. “Hepatitis C elimination in the Netherlands (CELINE): study protocol for nationwide retrieval of lost to follow-up patients with chronic hepatitis C.” BMJ Open Gastroenterology 7.1 (2020): e000396.
- Kemppinen, Juha, et al. “Expanding access to hepatitis C treatment by improving linkage to care: Establishing a cascade of care and active linkage program for the South Karelia region in Finland.” Health Science Reports 3.4 (2020).
- Keymeulen, Hannah, et al. “Patients with chronic hepatitis C virus infection are at high risk of being lost to follow-up: focused interventions can increase linkage to care.” Acta Gastroenterologica Belgica 83.1 (2020): 94-94.
- Kracht, Patricia AM, et al. “REtrieval And cure of Chronic Hepatitis C (REACH): results of micro‐elimination in the Utrecht province.” Liver International 39.3 (2019): 455-462.
- Lange, Sarah, et al. “ReLink strategy in diagnosed-but-untreated hepatitis C-positive patients in Germany: report from a single center.” Zeitschrift für Gastroenterologie 62.10 (2024): 1701-1707.
- Métivier, S., J. Foucher, and M. Maguin. “Recall of HCV patients lost to follow‐up. ReLink study in two expert centers in France [abstract 888].” Hepatol 72.1 (2020): 542-543.
- Mohamed, Osob, et al. “P55 Looking for a needle in a Haystack: outcomes of the surrey hepatitis C/PHE lookback exercise. Re-engaging patients in a low prevalence ODN.” (2020): A33-A34.
- Morales Arraez D, et al. Telemedicine and decentralized treatment dispensation to rescue patients in a hepatitis C micro-elimination program based on onsite driedblood spot testing in drug addiction centers. EASL 2020. THU348
- Morales-Arraez, Dalia, et al. “Reengagement strategies for hepatitis C patients lost to follow-up: A randomized clinical trial.” Hepatology Communications 7.6 (2023): e0080.
- Moreno P, et al. Recovery of HCV Patients Using an Interdisciplinary Team: Retrieval of lost to follow-up patients from Tenerife, Spain. AEEH 2023. 96
- O’Connell, Sarah, et al. “Opt-out panel testing for HIV, hepatitis B and hepatitis C in an urban emergency department: a pilot study.” PloS one 11.3 (2016): e0150546.
- Osborne, William, et al. “An experience using historical hepatitis C data to Re-Engage: Possibilities and pitfalls during the COVID-19 pandemic.” Public Health in Practice 2 (2021): 100207.
- Ponziani, Francesca Romana, et al. “Missed linkage to care for patients who screened positive for Hepatitis C in a tertiary care centre: Results of the Telepass project.” Journal of Viral Hepatitis 28.4 (2021): 651-656.
- Remy, André-Jean, et al. “Find out HCV patients: systematic study of 2013–2020 HCV files of a MDT viral hepatitis expert unit on the future of patients has made it possible to find out the lost ones and put them into treatment.” Journal of Hepatology 77 (2022): S542.
- Sampedro Andrada B, et al. Letter Sending Program for Confirmation and Treatment of Patients with Chronic HCV: AEEH 2023. 78
- Schwarz, Caroline, et al. “ELIMINATE-interim results of an Austrian HCV macro-elimination project.” Journal of Hepatology 77 (2022): S545.
- Steininger, Lisa, et al. “Direct patient-physician communication via a hepatitis C hotline facilitates treatment initiation in patients with poor adherence.” Wiener klinische Wochenschrift 133 (2021): 452-460.
- Torner, Maria, et al. “HCV micro-elimination strategy in a tertiary hospital: identification of lost cases and linkage to care.” Journal of Hepatology 78 (2023): S1192-S1193.
- Urda, José Luis Castro, et al. “The efficiency of artificial intelligence for management and clinical decision-making in the identification of patients with undiagnosed HCV infection (Intelligen-C strategy).” Gastroenterología y Hepatología (2025): 502362.
- Vargas‐Accarino, Elena, et al. “Cost‐effectiveness analysis of an active search to retrieve HCV patients lost to follow‐up (RELINK‐C strategy) and the impact of COVID‐19.” Journal of Viral Hepatitis 29.7 (2022): 579-583.
- Vargas‐Accarino, Elena, et al. “Enhancing linkage to care for hepatitis B, D, and C patients: a retrospective‐prospective study.” Alimentary Pharmacology & Therapeutics 60.10 (2024): 1308-1314.
- Vázquez, Pablo Parada, et al. “Artificial intelligence-assisted identification and retrieval of chronic hepatitis C patients lost to follow-up in the health area of Pontevedra and O Salnés (Spain).” Gastroenterología y Hepatología (English Edition) 48.1 (2025): 502226.
Middle East
- Türkoğlu, Emine, Zafer Parlak, and Hüseyin Şener Barut. “Assessment of HCV-RNA test results and access rates to antiviral treatment in patients with anti-HCV positivity-a 10-year analysis.” Turkish Journal of Medical Sciences 52.6 (2022): 1984-1990.
North America
- Caldwell, Sylvia A. B., et al. “Year-to-Year comparison of Virginia’s Hepatitis education and patient connection referral on release program outcomes for those recently released from incarceration.” HPHR. 2022;56.10.54111/0001/DDD1
- Dever, John B., et al. “Engagement in care of high-risk hepatitis C patients with interferon-free direct-acting antiviral therapies.” Digestive Diseases and Sciences 62 (2017): 1472-1479.
- Goff, Sara, et al. “995 Lost to Follow-Up: Patients Diagnosed With Hepatitis C Virus During Pregnancy May Not Seek Postpartum Treatment.” Official journal of the American College of Gastroenterology| ACG 114 (2019): S578.
- Gormley, Mirinda Ann, et al. “No Patient Left Behind: A Novel Paradigm to Fulfill Hepatitis C Virus Treatment for Rural Patients.” Open Forum Infectious Diseases. Vol. 11. No. 5. US: Oxford University Press, 2024.
- Hyde, Zak, et al. “Evaluation of a pilot emergency department linkage to care program for patients previously diagnosed with Hepatitis C.” Journal of Viral Hepatitis 30.2 (2023): 129-137.
- McMahon, Brian J., et al. “Cascade of care for Alaska native people with chronic hepatitis C virus infection: statewide program with high linkage to care.” Clinical Infectious Diseases 70.9 (2020): 2005-2007.
- Mendoza, Denise, et al. “2503. Re-engagement in Care for Patients with Positive Hepatitis C Virus Antibody Test: A Descriptive Study at a Large University Hospital.” Open Forum Infectious Diseases. Vol. 10. No. Supplement_2. US: Oxford University Press, 2023.
- Nance, Anna R., et al. “Hepatitis C treatment at a rural Navajo health clinic using project ECHO.” Online Journal of Rural Nursing and Health Care 20.2 (2020): 133-155.
- New CDC Report Reveals Only 1/3 of Hep C Diagnoses Lead to Cures, Spotlighting a Broken System in Dire Need of Coordinated National Response
- Rammal, J-A., et al. “273 Use of an Electronic Medical Record Flag to Reconnect with Patients Lost to Follow-Up in a Hepatitis C Virus Screening Program.” Annals of Emergency Medicine 80.4 (2022): S119.
- Rowan, Sarah E., et al. “Viral hepatitis and human immunodeficiency virus testing and linkage to care for individuals enrolled in an opioid treatment program.” The Journal of Infectious Diseases 222.Supplement_5 (2020): S384-S391.
- Ruffner, Andrew H., et al. “Identifying ED patients with previous abnormal HIV or hepatitis C test results who may require additional services.” The American Journal of Emergency Medicine 38.9 (2020): 1831-1833.
- Schwartz, Jessie, et al. “Telephone patient navigation increases follow-up hepatitis B care in the postpartum period for immigrants living in New York City.” Journal of Immigrant and Minority Health 23 (2021): 1179-1186.
- Strebe, Joslyn, et al. “Patient navigation increases linkage to care and receipt of direct-acting antiviral therapy in patients with hepatitis C.” Clinical Gastroenterology and Hepatology 21.4 (2023): 988-994.
- Tandon, Saniya, et al. “Successes and challenges of best practice alerts to identify and engage individuals living with hepatitis C virus.” Frontiers in Public Health 12 (2024): 1281079.
- Webster, Rachel et al. “Health Department Efforts to Increase Hepatitis C RNA Testing Among People Appearing Out of Care: Comparison of Outreach Approaches, New York City, 2017.” Public Health Reports (Washington, D.C. : 1974) vol. 135,6 (2020): 823-830. doi:10.1177/0033354920952068
- Wegener, Maximilian, et al. “Observational pilot using a Data to Care intervention strategy to promote HCV re-engagement and cure for persons with HIV/HCV co-infection who are out of care.” BMC Health Services Research 25.1 (2025): 140.
- Wyatt, Brooke, et al. “A Digital Case‐Finding Algorithm for Diagnosed but Untreated Hepatitis C: A Tool for Increasing Linkage to Treatment and Cure.” Hepatology 74.6 (2021): 2974-2987.
- Yang, Anita, Debbie Zachary, and Jane Giang. “Impact of a nurse care coordinator supporting a clinical pharmacist practitioner in further managing HCV-infected patients.” Gastroenterology Nursing 44.1 (2021): E11-E17.
South America
- Mendizabal, Manuel, et al. “Implementation of a re-linkage to care strategy in patients with chronic hepatitis C who were lost to follow-up in Latin America.” Journal of Viral Hepatitis 30.1 (2023): 56-63.
- Ferraz, Maria Lucia Gomes, et al. “Retrieval of HCV patients lost to follow-up as a strategy for Hepatitis C Microelimination: results of a Brazilian multicentre study.” BMC Infectious Diseases 23.1 (2023): 1-5.
- Bittencourt, Paulo Lisboa, et al. “Telemonitoring of the Continuum of Care of Hepatitis C During the COVID-19 Pandemic in Brazil.” Telemedicine and e-Health (2023).
- Sotera, Gisela Fabiana, et al. “P-35 Relinkage of Patients With Chronic Hepatitis C Infection in the Context of the COVID-19 Pandemic” Annals of Hepatology 28 (2023): 100937.
- Otegui, Juan, et al. “P-84 Implementation of a step-by-step strategy based on the treatment cascade to eliminate Hepatitis C virus infection in the Hospital Central de las Fuerzas Armadas from Uruguay. Preliminary Report.” Annals of Hepatology 24 (2021): 100447.
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